A Holiday Message for YOU!

Maura’s Intro:

We have something super special for your final day (or is it??) …Day 12 of the 12 Days of TAP!

Day 12 brings you the most caring, passionate, incredible individuals who lead the TAP Unlimited Group Programming… we couldn’t catch all of them, but you will see some common themes in all of the Speech Pathologists, Music Therapists and Leaders that TAP employs…they LOVE their “job”!!  I’m so blessed to call these people my colleagues, my friends and yes, my family!!  Enjoy!

Abbe Simon: T is for terrific, tremendous, togetherness  
A is for amazing, abundant, achievement 
P is for passionate, patient, people  
 
TAP adds so much to my life. I am grateful to be part of this special organization and to know the people who continue to show me that nothing is impossible.  

Sara Summers:  In the short time I have been a part of TAP, I have been impressed with the supportive community it provides.  Participants cue and help one another in a non-judgmental way and truly enjoy one another’s company.  TAP has made a tremendous impact on decreasing the sense of isolation during this pandemic and I’m honored to be a part of such a great organization. 

Sevanne Epperson:  Our TAP community has shown our strength and resilience this year. TAP embraced the virtual world and without interruption we continued to serve our families. I feel incredibly fortunate to be a part of such a strong organization. It is truly an honor and privilege to be able to make a difference in the lives of our clients. 

Tisha Shah:  TAP is a community of people from many walks of life who are bonded by their experience with aphasia or by a commitment to supporting those impacted by aphasia. Although, everyone’s journey may be different, the fabric of TAP has many common threads…compassion, inspiration, connection, understanding, love, encouragement, and support. TAP community members are doing life together by supporting and celebrating each other through all of the ups and downs. We are centered on the knowledge that aphasia awareness and advocacy are vital in our community and that personal goals can be achieved through our own determination and resilience. In every TAP group, event, or interaction – hope, determination, purpose, and engagement can always be found. 

Julia Bryan Canavan: TAP has been a blessing to me this year in ways I never imagined. After resigning from WakeMed as a SLP after 31 years due to COVID, I have the opportunity to able to participate in TAP zoom groups the two groups people with aphasia of diverse ages and backgrounds I work with each week have been a huge encouragement to me. I have seen the relationships and discussions in these groups between these individuals grow in their communication skills along with developing relationships as family in a time of isolation for so many. It has been the greatest privilege and gift to me to participate and grow so close to these wonderful and diverse individuals I have yet to get to meet in person.  
 
I am privileged to be a part of the TAP network and encourage your support of this impactful organization in any way you can. The blessings I have received are indescribable. THANK YOU TAP!! 

Megan Wardlow: Even in these crazy times, TAP is a welcoming family to all newcomers! I am thrilled to have found a place to hang my speech therapist hat, make new connections, and get to serve a top notch organization. It is a delight to watch our clients have meaningful interactions with each other and therapists, even if it is just via Zoom. I can’t wait until I can attend my first in person session. 

Martine Bullard: TAP is a wonderful organization that provides a home base for so many people.  Amid the uncertainty and stress that everyone has experienced this year, TAP has been steadfast, and continued to provide important personal connections as well as opportunities for people living with aphasia to improve their speech and communication challenges.  I am so proud to be a part of the TAP family, and to be able to provide music therapy during weekly Music Mania sessions! 

Candace Seibert: In this season of giving, I am reminded that TAP is a huge gift in all our lives. In the seven years I have been blessed to be a TAP group leader, I have worked with, learned with, laughed with, and at times even cried with the most amazing group of people I have ever known. What a privilege to have the chance to know this incredibly diverse family. And to think we would never have known each other were it not for TAP! Let us all rejoice and support TAP in these last days of 2020, as we look with hope toward the future. 

Taylor Hickok:  Aphasia can be so isolating, especially so during a worldwide pandemic. TAP has been the antidote to this isolation. Despite all the hardship, loneliness, disconnection that 2020 had ushered in, TAP has worked so hard to provide a sense of community, support, empowerment, and connection for the individuals and families we work with. I have no words to describe how grateful I am to be a part of this amazing organization and I look forward to seeing what great things 2021 brings.  

Crista Misenheimer: TAP has been able to provide community and support when people have needed it the most. TAP clients inspire me every week and I’m honored to be a part of this organization. 

Kelley Shaver: TAP’s core values for our members are Hope, Determination, and Purpose. Unexpectedly, these are the gifts I have actually received from the TAP family over the past 8 years, particularly during this long, strange year. Thank you for providing me HOPE through the laughter shared during our virtual meetings, DETERMINATION to keep striving for continual improvement both personally and professionally, and a PURPOSE when it feels like there are so many things beyond our control these days. 

It is such a gift to be a part of this family and I hope that all members can feel the connection and warmth, despite our physical distance this year.  

Caroline Elmore: 2020 has been a year for the books. I am so thankful for TAP and the community that comes along with it. Being a part of TAP has been a life changing experience and I am excited to see what 2021 has in store!   

Kaylea Nicholson: I am so proud to be a part of the Triangle Aphasia Project. I love starting each week with TAP into Talking and TAPLinks. It is amazing to see how the clients support and inspire each other. I’m looking forward to 2021 and especially to eventually seeing everyone in person again.  

Kristine Strobbia: Gratitude. Connection. Family. These are the words that come to mind when I think about TAP. I am forever grateful for the opportunity to connect with this TAP family. During such a chaotic year, TAP has been a consistent safe haven for us to find joy, laughter, and perseverance. It is my greatest honor to work with each and every one of you. May you all have a safe and blessed holiday season. 

Rieppe Hendrick:  Wishes for a peaceful Holiday!  I am very blessed to be involved with TAP at Home!  Not only has positive social and wellbeing been witnessed by the TAP clients but undoubtedly by the group leaders involved in TAPRoots as well.  Thank you TAP Family for providing me with focus and connection during this trying year! 

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

New Additions

– Karen Mercado –

Maura’s Intro: 

The incredible gift of this job, ask any of the TAP group leaders, is that we have the opportunity to meet these awesome people that make up our TAP Family.  The hard part is knowing that we all wish we hadn’t “needed” to meet.  A common thread in these 12 Days of TAP stories seems to be that people are hesitant, nervous to join a program about an impairment that they may just be learning about themselves.  Most, if not all, don’t anticipate or want to believe, that they will need the programs and support beyond their initial hospitalization.  But the reality is that recovering from aphasia…compensating for reading/writing/speech/listening challenges and formulating new pathways (yay neuroplasticity!!) doesn’t come easily or quickly.  Finding cohorts in the journey, others who are traveling similar pathways, people who “get it” … this can be the game changer!    

I love how Karen describes TAP within her recovery story.  We love you and are happy that your family is now a part of the TAP family.  

Karen (client):

TAP has been such a major part of my healing story and just the fact that I am able to write it and type it is proof. I was a special education teacher for 10+ years before I had a massive stroke when I was 7 months pregnant with my second child on October 15, 2018. I wasn’t feeling well and on my way to work that day when I had a headache. Next thing I knew I woke up in a hospital bed 18 days later barely able to speak or know my name. Over months of rehabilitation and so much support from my family and close friends, I was able to come home in December just in time to celebrate Christmas with my family.  

I heard of TAP from an inpatient nurse at UNC hospital who shared that her own husband suffered a stroke and benefited from the amazing services TAP has to offer. Unfortunately for me, having a wicked case of post-partum depression along with adjusting to new life with certain limitations was a challenge for sure.  After sometime I told myself Ok I was ready to “meet” TAP! Of course perfect timing as COVD hit. Thankfully that didn’t stop TAP as they went virtual! The meeting is posted every week and clients (like myself) can and checkout what they would like to take part in each week.  It has been such a wonderful way for those who had to deal with a tough time finding some peace and knowing that they aren’t alone.  I so enjoy going to Music Mania and Movie Club. It has been really great to find stroke survivors and brain injury survivors who can relate to what I have gone through and want to talk with me about it.  It has also been great to just have some socialization that isn’t strictly on stroke recovery and speech (although it is understood why it is a part of it.)  

Maura always calls this group the TAP family, and at first I thought she was just using it an a “cute” way, but in no time (and through COVID craziness) I have come to see that it is really true. I have enjoyed the valuable time with great new additions to my life and I look forward to more good times to come.  

David (Karen’s spouse):

The saying, “Life can change in an instant” became true to our family in October of 2018. In an afternoon I was told my pregnant wife had a headache, to a physician informing me to say my final goodbye, to waiting nearly three weeks later for her to wake up and hear her voice again. During this dark cloud, our love for each other remained strong and our rainbow occurred when we welcomed our newest addition to the family, a beautiful baby girl.  

TAP has been an amazing outlet of support not just to my wife directly but to our entire family. With the resources TAP has to offer, Karen has an opportunity to share experiences with others whom unfortunately walked the same path. As caregivers we see all and always there for what happens next but TAP offers different thoughts, feelings, and ideas for individuals adjusting to their recovery.  

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Life Interrupted, but Far From Over!

– Stephen Albright –

Maura’s Intro: 

“Twenty four??  What?  I thought strokes happen to older people!”  Those of us in the rehabilitation field hear this exclamation often…shock that someone so young could suffer a brain injury of this type.  But, unfortunately, it happens and the incidence is rising.  I’ve read that more than 10% of the 800,000 strokes that happen in the U.S. each year strike adults younger than 45.  And a stroke occurring in a teenager or young adult is certainly a devastating blow in so many ways.  TAP Unlimited serves individuals from 18-99 years old and our average age is 47!  Think about all of your activities, hopes and aspirations begin complicated, or outright sidelined, by a stroke and aphasia.   

I am so appreciative of Stephen, who is relatively new to our TAP family, for sharing his story, for diving into the mission of awareness and advocacy for aphasia and for bringing to light the challenges that COVID-19 has had on those experiencing stroke/aphasia in the midst of a pandemic. Watch his video!  Stephen’s dramatic and terrifying recounting of feeling “confused” and “alone” in the hospital upon awakening from brain surgery is chilling. It is what we, as speech pathologists and healthcare workers, have feared!  But its also what we have taken on as a valid and vital accessibility and human right!   

A person with aphasia, a communication disorder, requires…and has the right, to supports necessary for communicative access… and yes, this often means another person!  Per the amazing organization CommunicationFIRST: “If you are a patient in a hospital or other health care setting, you still have communication and other civil rights under Titles II and III of the Americans with Disabilities Act (ADA), Section 504 of the Rehabilitation Act, and Section 1557 of the Affordable Care Act (ACA)—even during a pandemic.”  The realities of COVID-19 are frightening and the restrictions put in place by healthcare facilities, adult living communities and businesses has been essential.  This can not, however, result in limited access to information and services for people with difficulty in comprehension or expression of language.  TAP has both heard and witnessed the impact of how an “abundance of caution” has resulted in increased isolation and risk…we have also heard of great advocacy on behalf of individuals with aphasia by healthcare workers, family members and volunteers.  We encourage creativity (i.e. FaceTime, Zoom, etc.) and consideration in anticipating and determining needs of persons with aphasia during this challenging time.  Contact TAP for information on strategies and tools you can use if your loved one is hospitalized or lives in a facility and stay tuned for an upcoming TAPTalk.   

Stephen, thank you…for this opening to share information on aphasia advocacy and for being a strong voice representing each of our values:  Hope, Determination, Engagement and Purpose.  We are grateful for you!   

Stephen (Client):

My name is Stephen Albright and I’m 24 years old. I had a stroke seven months ago because of an “AVM”, which is a birth defect where a vein and an artery is twisted together. I’m still working on my aphasia, but I’m progressing and I’ll get there!

While I’ve had multiple adversities in my life – concussions, cancer, and a stroke – I’ve been lucky to have my family, friends, and therapists. They have pushed me every day to get better, and I wouldn’t be able to do this without them.

I really believe that adversity is what makes us stronger. We just must keep going! 

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Zoom TAP meetings: Possibilities Abound

– Louis Pate –

Maura’s Intro: 

Covid-19 has kept people apart…and wait…it’s also brought people together.  Being able to see the silver lining of this global pandemic often requires one to recognize new opportunities and seek out topics and activities of interest.  When TAP groups shifted, we worried about losing loyal attendees and how individuals would adapt to this new and changing landscape.  But our TAP clients are known for their determination and as we watched clients “pop into” new groups…we saw possibilities open up!   

It was clear that Louis would enjoy a conversational group… he is extroverted, social and has an innate gentle character that is magnetic to all who know him.  Louis joined in groups that were based on conversation, movies/TEDTalks, music and even meditation.  Louis sits aside his wife, Joyce, but relies on her only for visual prompts.  He has gained confidence in his communication and is consistently welcoming and passionate about aphasia advocacy.   

Louis and his wife participate in our Meditation group, led by Joelle Rogers, our meditation and yoga guru, as well as another fierce stroke survivor.  

Enjoy.

Louis (Client):

Little did I know what was about to change my life 2.5 years ago! After many years in politics a hemorrhagic stroke left me with limited vision and expressive aphasia. Talk about discovering a whole new world! 

We live an hour’s drive from the triangle area, but after my initial therapy we discovered a group of helpers who were available to help me continue my therapy. We took advantage of two groups—a conversation group in Clayton and a book club in Cary. I was an active member until the pandemic hit. That was another sudden thing! 

The facilitators were so nice to call and check on us and even sent masks. They were the ones who encouraged us and told us we should get involved with the Zoom groups. That was not something we were used to. Sometimes I have to stop and think and remember I’m not going to a meeting. I’m in a meeting at home and the other people are in their homes, but we are all together. I’m at home, but yet I’m otherwise. 

The groups in TAP are very welcoming and dynamic people, and that has been very helpful to me. Some of them are well beyond my abilities, and I have enjoyed getting to know people like that from all over. It’s stimulating to have people of various backgrounds gather. We’re from all walks of life, but we’re all responding in our way to what has been laid upon us. There are a lot of things lacking because we’re all recovering and because of the pandemic, but we are meeting to attempt to make up for those things. We’re battling two different things together. 

The therapists and facilitators are top notch and very qualified. They do a good job of dealing with the differences among the groups and make sure everyone is engaged and participating. A lot of them are volunteers and give of their time to help. That means so much. 

I have especially enjoyed the music, Bible study, and book groups. Music is very entertaining and important to me. I used to sing in a community group and my church choir. The music gives me a way to express myself and continue to do something I love. The Bible study group is full of believers who have different backgrounds and ideas, but we all tend to agree with each other’s responses. We support each other and pray for each other. In our book club we read interesting books that I wouldn’t have read otherwise. Beneath A Scarlet Sky by Mark T. Sullivan was fascinating to me. I was in the Air Force for 20+ years and am a Vietnam Vet. The book helped me visualize war from a different point of view. It was so realistic–a marvelous book! 

 Another great group is the meditation group. Joelle has very calming directives that give us all a sense  of relaxation.  

TAP helps me so much. There are certain places in your mind where you don’t really want to get deeply involved, but you realize if you don’t then you are going to miss out on something. TAP makes me work and think. It makes me realize that I missed some things and helps me expand my horizons.

Joyce (Louis’ wife):

As a “helicopter spouse” – a totally new role for me – I’m grateful for the opportunity to participate in the Care Partners Support Group.  At this point I cannot imagine life without TAP; what a blessing you are to us! 

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Aphasia: Learning that you are NOT Alone.

– Tanya Locklair –

Maura’s Intro:

Today’s story offers more than inspiration, more than motivation… it offers the opportunity to pause.  To be grateful.  To be present.  It’s a gift and it is personified by this incredible woman.  Tanya came into the TAP Home Office for her consultation accompanied by her friend, who just so happened to be her boss.  It was evident immediately that this law practice, Banks Law Firm, was more than a group of attorneys… it was a family and so the transition to our TAP family seemed, to me, a perfect fit!  I listened as Tanya told her story with grace and a paucity that made me absorb her entire experience.… I listened as she explained how her firm had stepped up and wanted to assist her as she embarked on this aphasia journey and there was a sense of calm commitment that to this day, I can’t explain.   

Tanya needed little coaxing to step into the group and appeared immediately relieved to know that the language challenges she was experiencing represented a shared reality. She captivated the group as she shared her narrative and was encouraged by their stories.  I was watching what I always dreamed that TAP would become, what I already knew TAP was…it was a safe place, a haven for this journey…and yes a family. Moreover, Tanya and her boss invited me to her law firm on multiple occasions to educate and train her coworkers on the impact of aphasia.  These trainings were evidence of the understanding that all persons who communicate with people with aphasia need the tools to assist, challenge and engage.  

I’m so appreciative that Tanya agreed to provide her story for the 12 Days, because here you will feel the reality of aphasia’s frustrating presence, but feel assured that hard work, commitment and faith will allow you to address, and often achieve, your goals.  Tanya has made incredible progress since her stroke…she continues to work, enjoy her hobbies and now serves on the TAP Unlimited Board of Directors.  Her role as an attorney, a stroke survivor and a woman with a mission to insure equitable services to those with aphasia…is a true gift to our organization.

Enjoy this video and written story!

Tanya (Client):

Immediately after my second stroke in June 2018, I was barely able to speak, and unable to read and write.  Like others who suffer from aphasia, the effects of this disorder were devastating to me personally and professionally as an attorney.  TAP has been instrumental in helping me find my voice, both literally and figuratively, by giving me the tools to better communicate, by providing me the confidence to know that I am not defective because of my condition, and most iportantly, by making me feel like I’m not alone. 

I am grateful that I can benefit from the excellent programs and support that TAP offers.  By being a client of TAP who is also a member of the Board of Directors, I am committed to making sure that “the voices” of those with aphasia are heard, loudly and clearly.

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Navigating a New Normal while Never Giving Up

– Dick Walker –

Maura’s Intro:

Many of our clients/families, even those with medical or healthcare experience, are thrown into a world of new vocabulary when dealing with the diagnosis of stroke and aphasia. First you are told that your loved one may not survive, and then often told that if they do live, they will have devastating and lasting disability.  There may be those that attempt to communicate hope, but the sheer intensity of information can be overwhelming.   

When I met Dick and Jane, and their amazing family, I was so moved by their expressions of dignity for this survivor and receptiveness to all tools and strategies to improve language access.  They attended Learning to Speak Aphasia training, they requested additional information, asked questions and provided support for Dick to fully participate in rehabilitation. It was heartwarming to hear of stories of Dick’s pilot adventures and watch the family truly listen.  In a world where communicative access and expression is such a challenge, listening, encouraging, and restating is a valuable skill set.   

Dick continues to make progress, not just because he participates in virtual programs with TAP, but because he is encouraged to do what he loves… golfing with friends and enjoying his family time.  Check out the story of a bucket list vacation ending in a supreme challenge, and yet, dealt with with grace and grit.  Enjoy! 

Dick (and Jane) Walker – Written by Jane

On August 1, 2019, Dick and I left RDU for the trip of a lifetime, an Alaskan cruise on Holland America.  Dick had booked our “bucket list trip” in 2018 and meticulously planned it.  We had a wonderful time with our close friends and my brother & sister-in-law. Our travel companions all said that Dick was in good spirits and in good health throughout the week-long trip.  We enjoyed the ship’s meals, activities, and shore excursions; the trip met our high expectations.  Since one of our retirement goals was traveling, we were pleased enough to buy a voucher for a future cruise before we left the ship. 

We disembarked & traveled by bus to SeaTac Airport and after saying goodbye to my brother and his wife at the gate, things rapidly changed.  I knew something was wrong when Dick got confused in an airport he had traversed hundreds of times in the years he worked for American Airlines & Boeing.  When I asked him for his boarding pass so that we could go to our gate, his speech became incomprehensible.  I asked the gate agent to call for medical help.  Dick was transported to Valley ER and after assessments and imaging, it was clear that he had had a massive stroke.  Later, I would learn that the main stroke was in his left frontal lobe, affecting speech and language.  He was then transferred to Harborview Medical Center, a Trauma 1 level hospital staffed by neurosurgeons.  Thankfully, he did not need surgery.  Two of the couples who traveled on the cruise with us were still in Seattle.  Along with them, a close friend who had moved to Seattle, and my family & other  caring friends, I was taken care of during those first shocking hours and the following weeks. My daughter set up Dick’s site on Caring Bridge. Comments, phone calls & texts from our cheerleaders assured me that we were in their prayers; that was comforting!

My son Jeff and my daughter Jenny arrived that first night, even though I told them “I can handle this.” (I couldn’t, not even a possibility.) Somehow, we all made it through the next two weeks.  Dick could not speak, swallow, or move, particularly on his right side. He was moved to the acute care floor after two days in ICU.  Daily therapies (OT, PT, & Speech) were designed to help him regain enough strength to endure a trip home to Raleigh as well as participate in three hours of intense daily therapy when we arrived home. Thankfully, we had purchased trip insurance, so when the time came, Kathy, our experienced flight nurse, coordinated all the many aspects of transport by ambulance to SeaTac, a very long flight home due to weather, and an ambulance transfer to Wake Med Rehab Hospital.  At Wake Med, Dick regained his strength and participated in 3 or more hours of therapy per day with dedicated, hard-working therapists (Jonathan, Darlene, Haley, Megan, & Karen).  Haley, his primary Speech Language Therapist, was very familiar with TAP Unlimited, and she used many TAP strategies. 

At the time of Dick’s stroke, I was working part-time as a Speech/Language Pathologist for Wake County Schools.  While we were in Seattle, two of my SLP friends took the time to call or text me.  They both told me about an amazing organization, Triangle Aphasia Project, and suggested that I call Maura when we arrived home.  Since I had only worked with children during my long career, there were many aspects of Dick’s stroke that were very confusing.  Stroke survivors fight an uphill battle, and are vulnerable to myriad complications.  It can be overwhelming for both the stroke patient and family members.  Maura came to Wake Med and met with our whole family.  She assured us that Dick’s intelligence was there; we just needed to find new ways for him to communicate with us, his doctors, and his therapists.  She gave us some strategies that were easy to implement.  Dick was diagnosed with aphasia and short term memory deficits among a few other conditions.  Thankfully, his long term memory and reading skills were intact, although he had to relearn his name, birthdate, & other information.  He never seemed to waiver during long therapy sessions.  He didn’t seem to lack confidence that pain was temporary and all would be well in the end.  He proved to his therapists that he could overcome obstacles as he learned to walk again, regained movement & fine motor skills in his right hand, and learned to talk to us and answer questions again. 

During the last week of September, I, along with as many of our family members who were available, attended a “Learning How To Speak Aphasia” class at TAP’s Cary location.  The information that Maura presented was invaluable.  I learned that due to neuroplasticity of the brain, Dick will continue making progress for years; one doctor had told me that he would only make improvement in the first 6-12 months.  Maura explained in detail what aphasia, anomia, apraxia, and other speech deficits are.  She encouraged us to remain connected to family, friends & our community, stay motivated & determined, and work towards “doing what you love”.   

Also during his last week at Wake Med Rehab, my daughter and I toured most of the skilled nursing facilities in the Raleigh Durham area. At some, we were told that I would not be allowed to watch or participate in his therapy sessions.  I knew that wasn’t going to work for us; I wanted to know what he was doing during therapy so that I could build on those skills, particularly in language and conversation.  I also wanted Dick to enjoy his meals in a dining room, not eat alone in his room.  We found two facilities that served meals in a dining room for their rehab patients.  Choosing the appropriate SNF reminded me of the college application process; there are so many considerations.  In the end, the facility can invite you to move there or tell you that they do not have a bed for your loved one.    

Dick moved from Wake Med Rehab to Bella Rose, an upscale SNF in Garner, NC, on September 25.  During that time, my sister Ginga and her husband Owen, who own a renovation business, went to our Raleigh home and make changes so that our home would be safe & accessible for Dick.  During the three weeks he was at Bella Rose, he participated in OT (Kaitlyn), PT (Savannah), and Speech Therapy (Kathy).  He came home from Bella Rose on October 18, 2019.   In late October, Dick continued to receive out-patient OT (Alli), PT (Sam), and Speech/Language Therapy (Lorraine) at Steps for Recovery.   Today, he has progressed from knowing, but not being able to state his own name, to conversation, from not swallowing to a regular diet, and from not moving to walking and playing golf once a week!  He has “graduated” from both OT and PT. 

In March, 2020, we started accessing TAP classes at the Cary location.  Then, Covid-19 started spreading throughout the United States, and everything shut down.  For two weeks in March, we had no resources; it was a difficult time!  I tried to provide speech/language therapy for Dick.  I think that’s when I realized how valuable TAP Unlimited is.  Maura, her staff, SLP’s, and volunteers went to work and started providing on-line zoom classes; they made it possible to participate in valuable language therapy from our home.  

I know that Dick would not have made the progress he has made without TAP.  As his primary caregiver, TAP has been a resource for me, also.  Maura has the vision, dedication, and persistence to keep TAP Unlimited working smoothly.  Her team of dedicated, licensed SLP’s spend hours planning classes that focus on subjects such as conversation, music, reading, virtual traveling, & movies.  More recently, many additional classes in cooking, current events, hobbies, and others have been added.  There is no limit to the number of classes a person can sign in for.  Dick participated in 28 – 30 hours of classes in both September and October.  Since the classes are zoom classes, they are not limited to clients in NC.  We have gotten to know other class members, and we have become part of the awesome TAP family.  Dick tells his life-long friends that he has a job (surprising, because they all know he is retired!), which is attending classes and improving his communication skills.  Our journey has only just begun; we have many challenges to overcome. We are very, very fortunate to have the support of others at TAP who understand what our day-to-day challenges are on this long road to recovery.   

TAP Unlimited’s Mission is “to serve individuals with aphasia, their families, and the community through innovative life participation approaches that maximize communicative potential and reduce barriers to social reengagement”.  Maura and her team value each very unique stroke and TBI client, helping them and their families make the most of their lives.  Dick and I are so very grateful for them & their expertise!

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

A Warm and Welcoming Ambassador

– Jennifer Hargrove –

Maura’s Intro:

When TAP Unlimited required, like most other service organizations, a shift in programing, many were struck by a new opportunity.  An opportunity for a client to become a part of the larger TAP family.  Let me explain.  TAP Unlimited has a unique model in the aphasia-center world.  Being one of the first half-dozen programs in the country to serve individuals with aphasia, their families, and the community… we chose a paradigm different than the norm.  Instead of one center in one location, TAP opted to develop and institute a hub-and-spoke-model.  An administrative hub would serve as a main location, centralized for training services, meetings, etc. but as only ONE of a network of programs offered by the organization.  The “spokes” would (and did…pre-Covid) provide groups and programming within a person’s own community,…their geographical preference.  This model has many benefits:  1) increased awareness of aphasia; 2) collaboration and sharing of resources with community partners; 3) ease in introduction and transition of aphasia services and so much more!  But COVID changed all of that … at least temporarily.   

TAP’s boundaries with were lifted.  Issues of transportation, accessibility to locations, etc. were all lifted and TAP clients could attend as many (or as few) groups as they wanted to during the week.  Clients are able to check out book club, try their hand (or green thumb, as it may be) at TAPRoots / Garden group, join the TAPTastics history by getting involved in Music Mania and so much more.  This opening up of group possibilities also provides a widening of the TAP social circle.  TAP clients meet new friends, care partners connect with those traveling a similar journey and newcomers are introduced and transitioned into a warm and supportive environment.   

You can already feel the welcoming culture that TAP has enjoyed as it learns the ZOOM programming ropes…but let me introduce you to one of the ambassadors of this effort: Jennifer!  This beautiful, smart, kind and faithful woman has taken full advantage of the broadening of group options and joins multiple groups every day of our 6 day week.  She instantly projects the inviting nature we strive for in our program and everyone knows that when Jennifer is in the group…there will be laughter, smiles and no chance at getting away with less than your best effort.  I’d like to nominate Jennifer to be the group hospitality coordinator, but not sure she’d have the time with her dedication to improving her language with reading, writing and every opportunity to practice speaking!   Jennifer was the first person every group leader recommended for a TAP story and we are so blessed that she (and her daughter, Serenity) decided to share it with us.  Check it out!

Jennifer (JoAnn, Client): 

A TAP Unlimited was year on 2020.  I was scripted Samantha teaching in doctor, visions (20/20) and prescription CVS.  Sevenna teach synonyms was target.  Candace and Lynne was read books. 

Love💕 was Maura! 

Serenity (Jennifer’s Daughter):  

TAP came into our lives at the perfect time. My mom had just had a stroke and neither my brother nor I knew how to help her come to terms with her aphasia. I’m so glad we discovered TAP and enrolled her in their classes! They have helped my mom in numerous ways-from reading to speaking to socializing with those around her. She is continuously making progress, which is so amazing to see! She has a confidence and excitement about her future that I’m certain she wouldn’t have if not for TAP.  

TAP also equipped me with the tools I needed to care for my mother. I felt so lost and scared when my mom first had her stroke, but Maura and those at TAP provided family training for those caring for individuals with aphasia. Leaving the class, I knew I wasn’t alone and could lean on TAP as I cared for my mom. I am incredibly grateful for the kindness that continues to be bestowed upon my mom as she rebuilds her life. Thank you so much, TAP! 

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

A Setback and a Reason for Hope

– Dexter Davis –

Maura’s Intro: One of the great joys of TAP Unlimited is the ability to give the gift of hope.  This opportunity begins on the day of the initial consultation with TAP and continues throughout the programming choices, trainings and the groups themselves.  We take great pride in partnering with the amazing hospitals/medical centers and rehabilitation programs in the area to create smooth transitions that are wrapped in the spirit of connectedness and positivity.  It wasn’t always like this. Don’t get me wrong, we have ALWAYS had the support and engagement from our community of providers at all levels of the continuum of care.  But referrals often came when an individual was months or years into their rehabilitation journey.  It was THIS community that helped us change the timeline for the better.  The earlier a person is referred to TAP, for example, the more we all noticed families learning the do’s and don’ts of communication support, the less we saw people isolated or frightened about what this path would look like and the more we could support the work of the speech pathologists in the hospitals, rehab centers, home health, etc… it was a great meeting of the minds!  And it still happens today!

I have a saying that I use, profess and even use as my platform… it’s “Own Your Journey.”  This comes from understanding that all the tools, resources, support and training won’t be enough without complete buy-in and ownership by the individual on the journey. When I met Dexter, I knew in minutes that he was unstoppable by this very character trait.  He told his stroke story with an understanding that this event was the start of a new chapter in his life and that he was equipped (or he’d find the tools to equip himself) to address this challenge head-on!  The growth mindset was evident … see a challenge, seek out the strategy to compensate and rehabilitate and then practice it…again and again.

Dexter has quickly become a valued member of the TAP family…he is counted on for assessment of a situation and a way to find a lesson in every roadblock.  Yes, strokes are a “set-back” and a difficult interruption to your life plan.  And yes, strokes happen to young, healthy and active individuals.  But in this story, and in all of his interactions with TAP…Dexter reminds us that we are not alone and there is reason for hope!

Dexter (Client):

Set Back- Stroke February 4^th 2019  

I went to the urgent care to take care of my gout which I was in pain. 

The doctor/ nurse discharge diagnosis was Atrial Fibrillation, High Pressure, Gout, Ischemic Stroke, Impaired Speech (Aphasia) and heart failure. 

My family drive and flight to Boston from North Carolina, mom, brother and niece to support me. I wake up in ICU a day later and they walked into ICU. I remember the doctors asking questions about me and I didn’t understate the questions. 

I had Aphasia!  

It was tough to communicate with my family, nurse and doctors. I was frustrated communicate to people in the family. I was able to spell some words and write it down to communicate. I spent 12 days in the Cambridge hospital to improve my heart and Aphasia. I have been working on my heart and my speech and Aphasia since these days in Boston. 

I have change so much to prevent to another stroke: 

1. Closer to God
2. Take medicine 
3. Keep follow up doctors’ appointments 
4. Changed my diet of vegetables and fruit 
5. Be active 45 minutes three times a week. Walking and riding my bike around Charles River park in Boston. My favorite place to recover my stroke and reduce stress! 

My family research Aphasia and educate to cope with a family member that had a stroke with Aphasia. Aphasia has many types of Aphasia.

My family and me noticed my biggest weakness is audio comprehension.

My niece found TAP unlimited online and thought this program would continue recover my speech. I have met with some good people at TAP unlimited, so I can progress with this condition and life with Aphasia. I have also met some golf buddies! 

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

From Fear to Friendship

– Michelle Kilgore –

Maura’s Intro: It is often said that a story is best told by its author. This is true for everything from recounting family histories to self-advocating for needs by an individual struggling with access. To truly TAP (all pun intended) into the power of autobiographical narratives, you need a person willing to be vulnerable, to take chances and to embrace the power of influence. This is exactly how I would describe TAP client and advocate-extraordinaire, Michelle.

Michelle, and her wife, Gina didn’t just “step” into a role at TAP Unlimited, …they took a giant leap! Absorbing all of the lessons from Learning to Speak Aphasia training, watching intently and modeling group leaders cues and supporting every effort to increase aphasia awareness…this family launched into a leadership role in our organization. I love to listen to Michelle express genuine interest in every TAP client’s passions and her willingness to share her own. She has adopted new hobbies in the realm of art, horticulture and even cooking. I was not surprised by the enthusiastic nomination of this family to share their aphasia story…but, I was, once again, extremely grateful.

Enjoy!

Michelle (Client): I remember meeting Abbe the first time when my wife brought me to TAP. She asked ME to talk, and it was so hard. I had a hard time putting together a sentence talking to her. She told me how TAP would be very beneficial to me having other people with aphasia to talk to.

The very first meeting I went to at TAP I was very nervous, but I was welcomed and when I started to talk, I stopped having the fear to speak. I felt like the way I talked was ok because there were other people there that understood me and what I was going through. I became so excited to go to TAP because every time I went, I saw myself getting better and better. I felt less isolated. The people I have met have now become more than friends. They are family and are extremely important to me.

I have learned so many things from TAP classes, like how to garden, and as a 57-year-old woman, I am now finally learning to cook through TAP. As a very spiritual lesbian woman, I have been fully accepted at TAP, even in my TAP bible class, which means so much to me. I love spending time and learning and laughing with all of my TAP friends. It has made me braver to be able to talk to strangers out in public, and make my own phone calls for appointments and personal matters.

TAP has taken me from a place of fear and helped me find my voice!

Gina (Spouse/Care Partmer): My wife, Michelle, had a stroke 1 year ago. After a long stay in the hospital and rehab, several friends, nurses and therapist told us we needed to contact TAP. I was very nervous about this. I knew Michelle wouldn’t be working anymore, and I was terrified that we would not be able to afford any more medical fees. I didn’t know what to expect honestly. When we met with the TAP representative and we were told what TAP does, and the fees, what a relief. We got Michelle started with TAP right away, straight out of rehab.

With the pandemic especially, TAP has been a true-life saver for Michelle. As I sit in my office working during the day, it fills my heart with such joy listening to her laugh, cry and just connect with other people with aphasia. She is learning to garden and cook. She is encouraged to read and write and do art, which I personally love. I am incredibly grateful for what TAP has done for Michelle and has taught me about what to expect and how to help Michelle cope with her aphasia.

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

A Friend’s Story:  Forever Friends and “Zoom-Mates”

– Carolyn Taylor –

Maura’s Intro: One of the saddest things that I hear during consultations with new clients when arriving (or in this case logging in), is when an individual says “My friends are all gone.” Or, “Where did my friends go?”  Unfortunately, this is not an unusual occurrence and I am left to counsel, reassure and empathize noting that I am certain that they care, that they want to help, but just aren’t sure how to communicate with someone with aphasia. This uncertainty often results in a distancing that is unfortunate and may contribute to the social isolation that is so common with aphasia.   

This story is the direct opposite scenario. When I met Carolyn and her two besties (from college-days), as amazing as I thought Carolyn was, …I was equally as taken by her friends.  These true-blue friends exuded positivity and encouragement and communicated a sincere desire to learn as much about Carolyn’s aphasia journey as they could.  Carolyn was surrounded by people who believed in her and would help her access any and all help she needed to maximize her recovery.   

You will love this story, these friends and the beautiful, sweet Carolyn that graces 5-6 of our groups a week!

Mary Butler (TAP Family Member and Carolyn Taylor’s Caregiver): I am writing this story on behalf of my forever sister-friend, Carolyn (“CJ”) Taylor.  We’ve known each other since 1965 upon arriving on campus as college freshmen, and we were roommates three of our four years at North Carolina Central University in Durham.  

Carolyn has suffered two strokes — both of which occurred early morning while alone and driving her automobile — and both of which were left-brain injuries.  The first was in 2005 while heading to work as a social worker with Person County Social Services Agency in Roxboro.   The second stroke occurred while driving to Durham for an annual physical exam in January 2019.  CJ was very fortunate to receive assistance from a caring stranger who called 911 and got her to Duke Hospital in 2005; and last year, she was able to park her car and walk into her doctor’s office. 

Aphasia after both strokes left Carolyn with difficulty getting words out and/or understanding what is being said.  She underwent surgery at Duke Hospital twice, and a very lengthy rehabilitation at Person Memorial Hospital rehab unit.  Last summer, she moved into Cambridge Hills Assisted Living where their exceptional staff helped with her adjustment to independence and post-stroke depression. In August 2019, her loving 92-year-old mom (Elizabeth Jackson) passed away, leaving CJ with great loss and sadness.  With the doctor’s consent, CJ returned to her Durham home in November 2019, with 24-hour home health care and continued speech therapy. 

Duke neurologist, Dr. Graffagnino, introduced us to the Triangle Aphasia Project and thought it would be beneficial in dealing with Carolyn’s aphasia.  As co-guardians, Pecolia Beatty and I arranged an intro meeting between CJ and Maura Silverman, Executive Director; we also attended their family caregiver workshop.  More importantly, CJ felt comfortable with TAP’s overall philosophy, and she was on-board with TAP’s weekly group sessions led by Sowmya Shanker at Duke Regional Hospital’s Speech Language Pathology Dept.

Since the COVID pandemic and closure of speech therapy sessions at Duke Regional, CJ has learned to go online with TAP’s conversation groups during the week.  Although she doesn’t express in words, it’s pretty obvious that Carolyn enjoys her “Zoom-mates” because TAP helps her to connect with others who are sharing a similar journey. I am forever grateful for Maura and her team’s love, care and support of my best friend as she navigates this life-altered challenge – one that she faces each and every day. Although this road is different for everyone, it is my sincere hope that not only Carolyn’s journey, but every TAP client’s ultimate recovery, will be successful! 

Best wishes for a joyous and safe holiday season.

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Speak Softly and Be Heard

– Melissa Stanfield –

Maura’s Intro: There are many quotes that come to mind when I think of Melissa and her soft, kind and accepting voice.  “The voice of beauty speaks softly; it creeps only into the most fully awakened souls” (Friedrich Nietzsche) is the one that rises to the surface.  Melissa’s aphasia has, as long as I have known her, never stopped her from connecting, engaging and supporting her TAP friends.  This strong and gentle support is evidenced in every group that Melissa participates in, both in person and now in our Zoom meetings.   

I may have a reputation (based on Melissa’s comment below 😊) of tough coaching, but Melissa does not back away from challenges.  She is the first to say “bring it on” and offer her voice to any effort that TAP makes to increase Aphasia awareness or assists in the process of neuroplasticity for herself and her TAP friends!  She recently participated in the UnMasking Brain Injury project through the Brain Injury Association of NC.  If you have not seen this video…take the time to be impressed and inspired: https://youtu.be/kwtaW6RDdxM.

Rich, Melissa’s husband, offers his perspective in today’s story and mentions the support that the “Ice Breakers” make to our organization…stay tuned for a story this week that will tell you how our sustainer program has helped keep TAP afloat, especially during this difficult time!  Rich also mentions a program called Amazon Smile.  If you aren’t familiar… smile.amazon.com. Click here for instructions. You are shopping online anyways, right?  Why not have it support your favorite nonprofit.  

Michelle (client): In 2017 my world changed overnight. I had a stroke. I lost my voice. I was a nurse and never heard of aphasia.  

I had my family they were great. They supported me and encouraged me. 

When I heard of TAP I was afraid to go. 

Then I met Maura and I was more afraid. 😉 

Now I can spell better and read better than before my stroke. 

I enjoy going to TAP. Zoom made possible to see friends and make new friends. 

Thank you TAP. My second family. 

Rich Stanfield (spouse): TAP is truly a lifesaver.  TAP overcomes one’s inherent shyness, allowing people with shared experiences to get to know each other, trust each other, and learn from each other.  Melissa has really been able to be more herself, and in fact more outgoing and talkative with others than before her stroke.  This is because TAP gave her a voice she didn’t think she had.  TAP has given us methods to prepare for a doctor’s appointment, a shopping trip, etc.  When I cannot go with Melissa, she still has the confidence to go it alone.   

In today’s COVID environment, we especially appreciate TAP finding a solution to serve their clients – Melissa looks forward to TAP sessions so she can see friends that she otherwise would not. 

I am glad that we are fortunate enough to afford Melissa’s sessions, as well as provide ICEBREAKER donations for those that are not so fortunate. I hope others consider donating to TAP, too.  Also, don’t forget smile.amazon.com!

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!

Aphasia: Connections and Friendship

– Pete Andrews and Justine –

Maura’s Intro:  Welcome to the first installment of the 12 Days of TAP!  

2020 brought more than a global health crisis … it threatened the impassioned work of this, and many other, service organizations.  I recall the first time I heard the term “social distancing”.  As Executive Director of a nonprofit built on connectedness, I shuddered to think of how the very mission of TAP would continue in a world where we could not hold our friends near as they struggled with a diagnosis of aphasia, train their spouse or grandchildren on how to communicate with them, or reach over their shoulder to cue them to achieve their critical reading or speech goals.  But with the gift of support and encouragement by all of the TAP stakeholders, … we stood up and faced this challenge with the grit and determination that I credit my dear mom with!  We shifted to serve and we created a virtual TAP program that would continue to offer programming to each of our divisions:  individuals with aphasia, people who loves someone with aphasia, and those who serve people with aphasia.

It seems only fitting to kick off the 2020 End of Year Campaign with THIS 12 Days of TAP story… a story from, and about, a man who also personifies grit in his efforts to continue to connect and improve.  And to include the words of his daughter, a powerhouse herself, who has stepped up to help on TAP committees, organized and ran her own ½ & full marathon to benefit TAP and served as my props person for our 2020 Virtual Event!  I introduce you now to Pete Andrews and Justine Knight!

When my dad had his stroke, I would have never imaged he could be as happy and fulfilled as he is today.

My dad, Pete, had his stroke almost 13 years ago. One in three stroke survivors experience depression, and my dad was one of them. He was dealing with his new physical limitations, aphasia and the reality that he could never resume his job as a pilot. When he reflects on that time he says “I hated myself.” 

Fast forward to 2020. During a year when so many people are experiencing isolation and negativity, my dad is thriving. 

When COVID-19 hit, my dad’s first concern was that he wouldn’t be able to attend his TAP group. His speech therapy, his support group, his friends – everything he got out of attending TAP would be gone indefinitely. 

We quickly realized that wasn’t the case. With creativity and patience, TAP leaders taught clients like my dad how to use Zoom to connect to one another. 

My dad’s calendar filled up and he was spending more time with TAP than ever before because it was accessible at the click of a button. While the rest of us were feeling disconnected from our previous lives, my dad was more social than he’s been in 13 years. 

When weeks turned into months, the effect of his time with TAP became visible. His connections turned into friendships. His will to improve his writing showed when he addressed envelopes or made lists. And his speech is unbelievable.

TAP has brought so much purpose into our lives. We are blessed to be part of the TAP family and hope that you’ll join us.

From the TAP Home Office:

TAP Unlimited’s End of Year Campaign provides TAP Stakeholders an opportunity to embrace the reason for our efforts and hear from those who have been impacted by aphasia.  Aphasia, as you know, can be a devastating impairment resulting in social isolation, depression and disengagement from the passions and purpose of an individual’s life.  It can interrupt a career, destroy plans for retirement and threaten relationships.  TAP Unlimited is embarking on its 18^th year of service to those effected by aphasia across the Triangle and beyond. 

Our ability to pivot and create a virtual world of connection possibilities, to stay afloat and to even thrive, has been, in no small way, a result of the generosity of our donor base.  Today, we ask that you continue to support TAP by doing the following:

• Share this story.  Share it on your social media, in emails to your family/friends and to those you work with…it will increase awareness of Aphasia and provide hope to those who feel alone in this journey.
• Consider an end-of-year gift to TAP.  You can donate online and make it a gift by honoring someone on the aphasia journey.
• Donations can also be mailed in the form of a check or a donation of stock. Email us for more information.

Thank you for your faith in our organization and for supporting the 12 Days of TAP!